Name: Ronia Cole
Birth Date: 12/9/1970
Title: Precious
I want love and peace in the world.
Residence: MI
ID: CL-MIZ-RO-0025
Name: Ellie Quinones
Birth Date: 1/2/1933
Title: Mandy
Bleeding Disorder: VWD 1
I am the oldest woman I know with a bleeding disorder. I suffered in Venezuela. I have 4 children. I was told if I
had one more child I would die. I had many surgeries and I didn't have a lot of information only confusion.
Residence: MI
ID: CL-MIZ-EL-0026
Name: Johnna Cesta (LT) Birth Date: 7/29/1995
Title: Untitled Bleeding Disorder: VWD
Date of Diagnosis: 1995 doll doesn’t say anything. ID: CL-FLZ-JO-0027
Name: Jeanette Cesta (LB) Birth Date: 9/14/1962
Title: Regina Bleeding Disorder: VWD
I love my grandchildren so much, I wish I could have told them
in person. I'm glad that they will know so much more about their
VWD than I did. I'm glad there will be so many more choices for them
than there were for me. ID: CL-FLZ-JE-0028
Name: Julie Cesta (RT) Birth Date: 4/8/2000
Title: RachelFL13 Bleeding Disorder: VWD
Julie is the best person I know! Let's party! I love you all. ID: CL-FLZ-JU-0028
Residence: FL
Kathy Perkins Born: 5.1.1947
Doll Title: Rose Bleeding Disorder: Hemophilia Carrier with symptoms/ Factor IX
Date of diagnosis: After the birth of my first son
Other family members: great grandma, grand-daughter ID: CL-UNZ-KA-0029
Emilee Perkins Born: 4.7.2001
Doll Title: Rose Bleeding Disorder: Hemophilia Carrier with symptoms/ Factor IX
Date of diagnosis: Age 1
Other family members: great grandma, grandma. ID: CL-UNZ-EM-0030
Message: Hi, I am Rose and I am a symptomatic carrier. Doctor, please listen to me
when I say I can't use blood thinners. And when I say O need some help. Please listen to me.
Great Grandma & Grandma don't have a treatment center and the doctors ignore us.
Please help so that Emilee doesn't have to go through what we did!
Name: Angie G.
Birth Date: 2/5/1968
Title: Mom
Diagnosis date: after the birth of my son Bleeding disorder: Carrier - Factor XIII
I am a mom. I made the doll to be fun, like me - wild, curly hair, colorful clothes, and funky jewelry. But it wasn't
always like that. I remember times when it seemed there was no color or fun left in the world, as if my eyes had
been blinded to the wonder of life. Replaced, instead, with blue and gray hues of sadness and sorrow and red
slashes of anger. Then, I found something within myself. I found strength. I found character. I found purpose. I
have a wonderful son, who is growing each day into a most incredible young man, and I am a part of that. My doll,
therefore, represents the color and fun that has been returned to my life - the wonder of my son. Thanks so much
for including moms in this project!! What an amazing opportunity for women to share their common experience
with other women.
MOM
I am MOM.
I cry real tears.
I gave this to my son.
He was just 4 days old when he nearly died because of what I gave him.
It wasn’t my fault. I didn’t know I was a carrier.
I am MOM.
I watch in amazement as he grows each day.
I stand back as he learns to care for himself.
He is resilient.
I am thankful he is otherwise healthy and has no complications.
But I worry.
Each and every day.
That the blood product we put into his arm each month isn’t the treatment that takes him from me.
I cry real tears.
I am MOM
Angie is a Caucasian woman who lives in Spring Arbor, Michigan.
ID: CL-ANZ-MI-0031
Name: Goddess of VWD* DOB: 1-8-54 Date of Diagnosis: 1981 Doll Title: Venus, Dismal
Venus says: Do you know how it feels to bleed and bleed until your lips and nose are numb? Do you know how it
feels to be told “you just have heavy periods” and your heart tells you something else is wrong? Do you know
what it’s like to pass clots the size of tennis balls with your menstrual period? Do you know how very tired you feel
when your period lasts 30 days?Do you know what it’s like to be given a diagnosis for which there was not a
brochure or pamphlet….absolutely no educational materials whatsoever? Do you know how scary it is to only be
told “this is what you have” and “if something happens, a hematologist will know what to do”? Do you know how
frustrating and frightening it is to be told “women don’t bleed”? Do you know how terrifying a place the world
seems when no one believes or understands your medical diagnosis? Do you know how depressing all of this can
be?* vWD stands for von Willebrand’s Disease. This is a bleeding disorder that is passed equally among men and
women. The Goddess of vWD is a Caucasian woman who lives in Indiana. She is a force to be reckoned with in
the bleeding disorders community. She is the author of numerous educational pamphlets available through the
National Hemophilia Foundation.
For more information call: 1-800-42-HANDI
ID: CL-UNZ-GO-0021
Name:Angel Dunn (RT) Born: 1.4.2001
Doll Title: None Disorder: Hemophilia
Date of diagnosis: Age 4
Name: Kaylee Dunn (LF) Born: 1.4.2001
Doll Title: Cloie Disorder: Hemophilia
Date of diagnosis: Age 4
Other family members: sister and mom
ID: CL-UNZ-AN-0022
Name: Krystal Katz Born: 9.23.1991
Doll Title: Denise Anastasia Katz Disorder: vWD
Date of diagnosis: 2004
Other family members: cousins
Message: If my doll could talk she would say, "Live your life like there
is no tomorrow!"
The saying would come from tomorrows not promised to
anyone so you should do all your life goals without letting
anyone hold you back!
ID: CL-UNZ-KR-0023
Name:Courtney Lannon (LT) Born 6.12.1986
Doll Title: Delia Bleeding Disorder: vWD
Date of diagnosis: 2006
Michaela Lannon Born (LB) Born 1.11.1991
Doll Title: Raquel Bleeding Disorder: vWD
Date of diagnosis: 2006
Cynthia Lannon(RT) Born: Unknown
Doll Title: Untitled Bleeding Disorder: vWD
Date of diagnosis: Unknown
Other family members: two daughters
ID: CL-UNZ-CO-0024
Name: Dana Hammond
Title: Cindy
Cindy comes from a long line of women bleeders. She never knew she was a bleeder until a near fatal surgery.
Cindy was raised thinking all women had heavy periods and bruise easily. Now Cindy spreads the word educating
as many as possible.
Residence: NM
ID: CL-NMZ-DA-0024
CLOTNOT
Gallery One
STITCHES Womens Iniaitives 28056 Palomino Drive
Warren, MI 48093 Phone: 586-873-8034
