Name: Valerie Fetterman
Birth Date: 8/11/1957
Title: Party Girl
Bleeding Disorder: Platelet disorder, symptomatic hemo carrier
Nothing needs to change when you are diagnosed with a bleeding disorder.
You just have to be more careful!
Residence: MI
ID: CL-MIZ-VA-0049
Name: Belinda Crump
Birth Date: 3/7/1974
Title: Red
Bleeding Disorder: Hemophilia A
Date of Diagnosis: 1974
My name is Red can we be friends? Let's play!
Residence: IL
ID: CL-MIZ-BE-0050
Name: Ronia Cole
Birth Date: 12/9/1970
Title: Precious
I want love and peace in the world.
Residence: MI
ID: CL-MIZ-RO-0039
Name: Linda Wilson
Birth Date: 7/7/1946
Title: Sunshine
Bleeding Disorder: VWD; Platelet Dys.
Date of Diagnosis: 1990
Other Family Members: son, daughter, grandson
I've learned that even on the darkest days the sun is still shining and if we wait long enough it will reveal itself to
us.
ID: CL-MIZ-LI-0040
Name: Shari Luckey
Birth Date: 4/19/1968
Title: Scared Mama-To-Be
Bleeding Disorder: 10% Factor 9; Platelet Dys.
Dr., Please hear me! Take my concerns seriously! I'm scared I will bleed when I have my baby and you are not
listening! I know my body.
You're supposed to help me. Don't ignore me!
ID: CL-MIZ-SH-0041
Residence MI
This is the true story of a woman named Joanne who had four sons-a challenge in itself, but overwhelming when
you find out that 3 of her sons have Hemophilia B. These 3 sons went on to have thirteen children; seven of them
are daughters who share a rare common bond: they are all carriers of Hemophilia B. Their friends can’t relate, but
their cousins can! These girls, ages 6 to 20, have witnessed their fathers and uncles face many challenges that
living with hemophilia brings. They’ve also seen the unique challenges their grandmother has faced with a low
factor level, horrible bruising, let alone raising “typical” boys. But these girls have also witnessed their fathers and
grandmother not allowing hemophilia to rule their lives. They’ve overcome much physical pain and have lived full
lives with great faith in God’s goodness and grace. As these girls grow up and begin families of their own, we
realize that the odds are that several, if not all of them will themselves be mothers of hemophiliac sons. It is their
dream, and our prayers, that their sons will have available to them even better treatments and that perhaps we
might all some day witness a cure for hemophilia.
•
Name: Abi Werner
Birth Date: 8/19/1990
Title of Doll:
Emma Lynn Bleeding Disorder: Carrier – Hemophilia B
Diagnosis Date: Birth
ID: CL-UNZ-AB-0042
•
Name: Emily Werner
Birth Date: 7/27/1987
Title of Doll: Madelyn
Bleeding Disorder: Carrier – Hemophilia B
Diagnosis Date: Birth
ID: CL-UNZ-EM-0043
•
Name: Leah Werner
Birth Date: 10/6/1995
Title of Doll: Grace
Bleeding Disorder: Carrier – Hemophilia B
Diagnosis Date: Birth
ID: CL-UNZ-LE-0044
•
Name: Sarah Werner
Birth Date: 5/11/94
Title of Doll: Faith
Bleeding Disorder: Carrier – Hemophilia B
Diagnosis Date: Birth
ID: CL-UNZ-SA-0045
•
Name: Michaela Werner
Birth Date: 2/27/01
Title of Doll: Hope
Bleeding Disorder: Carrier – Hemophilia B
Diagnosis Date: Birth
ID: CL-UNZ-MI-0046
•
Name: Bethany Werner
Birth Date: 4/26/01
Title of Doll: Joy
Bleeding Disorder: Carrier – Hemophilia B
Diagnosis Date: Birth
ID: CL-UNZ-BE-0047
•
Name: Lynal Werner
Birth Date: 05/01/1990
Title of Doll: Marietta
Bleeding Disorder: Carrier – Hemophilia B
Diagnosis Date: Birth
ID: CL-UNZ-LY-0048
Name: Heather Humphrey
Birth Date: 8/5/1978
Title: Sara
Diagnosis Date: 1998, while pregnant
Bleeding disorder: Carrier, Factor VIII
"Anyway
the
work
shop
was
great!!
I
am
learning
more
&
more
every
time
I
meet
someone
new.
I
think
education
is
the
most
important
thing.
Even
people
who
have
the
bleeding
disorders
themselves
seem
to
be
uneducated
to
me.(unfortunately)
My
Life
is
not
affected
as
much
as
my
Grandmother's
life
was,
technology
has
improved
greatly.
My
opinion
would
be
educate
people
&
be
aware
of
what
you
can
do
to
prevent
bleeding
disorder
problems.
Thanks so much for the emails & info. They are greatly appreciated."
ID: CL-UNZ-HE-0032
Name: Jill Kozak
Birth Date: 11/1/1975
Title: Silent
Bleeding Disorder: VWD 1
I do not have a mouth because no one will listen to me. Underneath my pretty dress, there is a Band-Aid - this
signifies all the times I was given an "easy" fix instead of treating the problem. My dress and the lace trim signify
that I am a woman first.
Residence: MI
ID: CL-MIZ-JI-0033
Name: Alaina
Birth Date: 6/18/1980
Title: Strength
Bleeding Disorder: VWD 1
I was diagnosed young (3rd generation), and consequently have not had as many problems as others in my
family. However being diagnosed as a teenager poses its own set of issues. I dealt a lot with peer acceptance
and feeling "different" from other people my age. In college, I found myself in the martial arts.
In spite of the fact having a bleeding disorder can complicate certain aspects of the practices, such as board
breaking and sparring, it is where I find my strength. Sometimes, when other people find out that you have a
bleeding disorder, they treat you as though you are made of glass. When I practice takwando, I am
reminded that I am a strong woman(who happens to have a bleeding disorder.) ID: CL-MIZ-AL-0034
Name: Sue Furr (RT)
Birth Date: 2/1/1953
Title: I’m Free
Bleeding Disorder: VWD 1
After
years
of
prolonged,
heavy
monthly
bleeding,
unexplained
extreme
bruising
and
bleeding
after
dental
work,
it
was
such
a
relief
to
find
out
there
was
a
name
for
the
"bleeding
problem"
my
mother
always
said
our
family
had.
There
was
a
name
for
it
and
medications
I
could
use
to
lessen
its
effect.
I
felt
free
from
always
trying
to
explain
my
"problem"
to
doctors
and
my
large,
frequent
bruising
to
those
who
noticed
(friends
and
strangers).
Residence: MIID: CL-MIZ-SU-0035
Name: Anna Marie Lopez
Birth Date: 7/19/1962
Title: Untitled
Bleeding Disorder: Hemophilia Carrier
Other family members diagnosed: brother-severe hemophiliac
My name is Mary, mother sister, daughter and friend to all those whose heart is breaking because of bleeding
disorders. I say, "Use your mouth to speak only truth and to teach love. Use your arms to reach out to one
another and surround each other in love and weave your soul into others so that as the fabric of humanity we can
ease the world's suffering.
ID: CL-CAZ-AN-0036
Name: Dora A Lopez
Birth Date: 11/2/36
Title: Untitled
Bleeding Disorder: Carrier
Date of Diagnosis: 47 yrs ago
I am just like a butterfly still in a cocoon. With love, time and lots of support from those around me, I will become
a beautiful butterfly.
ID: CL-CAZ-DO-0037
Residence: CA
Name: Jan Saunders
Birth Date: 1/16/1944
Title: Janny
Bleeding Disorder: VWD
Date of Diagnosis: 1990
I'm six years old and I wake up with blood on my pillow. It's very scary
ID: CL-UNZ-JA-0038
If your doll could talk what would she say?
I hope to tell many people about hemophilia.
I also want to help raise money for people
like me. So help!
CLOTNOT
Gallery Two
STITCHES Womens Iniaitives 28056 Palomino Drive
Warren, MI 48093 Phone: 586-873-8034
